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October 22, 2014

This year’s oversold conference, held last month in Washington, DC, was arguably the most successful conference to date with unparalleled participation from researchers, industry and federal agency representatives and a number of programmatic “firsts.” 

October 16, 2014

Dr. John Vissing and his colleagues at the University of Copenhagen recently tracked a group of 68 adults with myotonic dystrophy type 1 (DM1), measuring their endocrine function change over 8 years.

October 9, 2014

The Myotonic Dystrophy Family Registry had a phenomenal first year, thanks to the robust participation of MDF community members. The Registry has enrolled almost 1,300 registrants, and along the way has served as a critical tool for clinical trial recruitment discussions and important DM research projects. 

Family Registry

 

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October 14, 2014

The fact that I have adult-onset DM1 takes a back seat to the rest of my life as much as possible, because my daughter and grandson require so much more assistance. 

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