Home | Myotonic Dystrophy Foundation

February 28 is Rare Disease Day! MDF is proud to be a Rare Disease Day partner for the third year in a row. Read more about Rare Disease Day and our 2015 advocacy activities! Learn more
Making a difference in France and at home Alain Geille, one of the organizers for the IDMC-10 conference, shares his family's journey with DM as well as plans for the upcoming international meeting. Read more
Isis Launches Phase I/II Clinical Trial Isis Pharmaceuticals has initiated a clinical trial for ISIS-DMPKrx to treat patients affected by DM1. Learn More
A Story of Hope and Recovery "There are always challenges, but our daughter Zoé is really a trooper," says Sarah Berman. Read More

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News

January 21, 2015

Several scientists have published the results of important DM research. Dr. Katharine Hagerman, PhD, Research Assistant at Stanford University, has provided MDF with lay summaries of some of this research.

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January 7, 2015

MDF Fund a Fellow Grants Awarded for 2015-2016

The MDF Fund-a-Fellow program is designed to help attract new researchers to the DM field, increasing the knowledge and science available regarding myotonic dystrophy. We are pleased to announce this year’s award recipients!

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December 11, 2014

Isis Launches Phase I/II Clinical Trial of ISIS-DMPKrx to Treat DM1

Isis Pharmaceuticals, Inc. has initiated a Phase I/II trial for ISIS-DMPKrx in patients affected by myotonic dystrophy type 1 (DM1).

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