Our Team

Finding a treatment or cure for myotonic dystrophy can't happen without uniquely qualified individuals who are dedicated to the cause. The exceptional people we call on each day are what keep us moving forward towards treatments.

Board of Directors

The Foundation's Board of Directors comprises leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps forge our path ahead, assess our impact, and guide our pursuit of patient-relevant outcomes.
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Medical and Scientific Advisory Committee

The Foundation's Medical and Scientific Advisory Committee is a group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews,  and speak at our annual family conference.
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Staff

The Foundation's staff plays an essential role in the day-to-day operation of our organization, and in setting our strategic agenda.
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Volunteers...coming soon