The MDF is committed to raising awareness about DM and the community with members of Congress and important federal agencies like the FDA. This year our goal is to expand our engagement with key stakeholders in Congress, federal and state agencies, medical professionals and the media and we need your help!
The Myotonic Dystrophy Foundation mission is Care and a Cure: to enhance the quality of life of people living with myotonic dystrophy (DM), and to advance research efforts focused on finding treatments and a cure for this disease, through community support, education, advocacy and research.
- Community Support & Education - MDF programs and services provide emotional support and education to help affected individuals and their families, and information and resources to raise awareness about DM in the medical community and the general population.
- Advocacy - Through MDF-sponsored initiatives and in partnership with other rare disease organizations, the Foundation advocates for increased funding for DM research and patient support services.
- Research - MDF raises funds to accelerate understanding of DM through research. MDF supports both clinical and scientific research targeted to finding treatments and eventually a cure for this chronic, degenerative disease.
Visit the MDF website regularly to stay informed about our activities and the latest news on care, treatment, and research on DM.