Myotonic Dystrophy Community

Family Corner

Bringing the Community of Families Together

This is an organization comprised of families traveling the DM path together. We are here to support each other and provide information.

If you or a family member is newly diagnosed with myotonic dystrophy, you are possibly questioning whether the diagnosis is correct and are looking for information about it.  Although considered a muscle disease, other symptoms related to your heart, eyes, gall bladder, cognitive function or personality traits, might have led you to a doctor’s office – not muscle weakness. You might never have heard of this disease before, and it might have taken years to get a correct diagnosis. If this is the case, rest assured you are not alone in your frustrating experience.

If you have known your diagnosis for a while, you have probably come to this site often for updates on the most current information available on myotonic dystrophy, for ways you can get involved in learning to cope and manage your disease, or ways to move research forward toward finding a treatment or cure.

What’s important is not what obstacles emerge along life’s path; rather, it’s how we respond to them. Education and open communication with others can eventually empower us to develop a positive attitude and manage our disease in the best possible way.

We hope you will check in often to connect with others, learn more and empower yourself and your family along the way. In the coming months, our Family Corner will host a number of exciting features, including the following:

We look forward to building a relationship with you and your loved ones.