Myotonic Dystrophy Support by Location

Find Support Near You

The following list shows support and resources funded from many different organizations by location. If you have a support group that you would like to add to this list, email us at support@myotonic.org. You can also post your support group meetings on our event calendar on our community site.

UNITED STATES

California:

Northern: Email Leslie Krongold: elkrong@yahoo.com
Southern: Email Alice Gunderson: longbeach@mdausa.org

Georgia:

Email Shannon Lord: smlord@mindspring.com

Oregon:

Email Barry Wald: barry.wald@hotmail.com

Other US Based Online Support Group Resources:

Myotonic Dystrophy Foundation: Community Site
Muscular Dystrophy Association: (MDA) Support Information
Muscular Dystrophy Association: (MDA) Weekly Chat
Congenital Myotonic Dystrophy DM1: discussion group for patients and parents
DM2: international support/advocacy group. This group requires registration and includes a forum for moderated discussion.
DM3: international support/advocacy group. This group is for patients with clinical symptoms of myotonic dystrophy who have received negative gene tests results for both DM1 and DM2, and are now suspected to have DM3 or DM4.