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07/08/2015 - 4:51pm

On Friday, July 10, 2015, the 21st Century Cures Act (H.R. 6) passed the US House of Representatives with an overwhelming 344-77 majority!

03/24/2015 - 2:28pm

Dr. Sharon Hesterlee reports back on MDF's involvement with the Muscular Dystrophy Coordinating Committee.

03/10/2015 - 1:37pm

For the second year in a row, MDF represented the DM community in Rare Disease Week activities on Capitol Hill and at the National Institutes of Health as part of the Rare Disease Legislative Advocates conference.

02/25/2015 - 1:13pm

FDA's Orphan Drug Program is designed to encourage pharmaceutical companies to develop drugs for rare or 'orphan' diseases that might otherwise not be appealing to industry.

09/26/2014 - 3:31pm

On Friday, September 26, 2014, the MD-CARE Amendments were signed into law by President Obama!

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