MDF holds an offsite planning meeting in January every year to look at the Care and Cure landscape for myotonic dystrophy. The annual goals are to identify urgent and high-impact opportunities to improve the quality of life of every person living with this disease while continuing to accelerate the search for therapies.
NINDS announces its intent to issue Funding Opportunity Announcements to support analytical validation of identified candidate biomarkers.
Make a gift to MDF during our Giving Tuesday campaign and double the impact of your donation! Thanks to the generosity of the Haylon and Lord families, MDF will match all gifts made now through December 5th, up to the first $10,000 raised. Give now and significantly increase your support of Care and a Cure for myotonic dystrophy families around the world!
Learn more about Dr. Ami Mankodi, principal investigator at the National Institutes of Health’s (NIH) National Institute of Neurological Disorders and Stroke (NINDS) in Bethesda, Maryland. Dr. Mankodi has been involved in research that has helped shape a fundamental biologic and molecular understanding of myotonic dystrophy (DM).
In June of this year, MDF initiated a new program called “MDF DM Days” to bring together clinicians, researchers and myotonic dystrophy (DM) family members, and provide close-to-home access to educational sessions.