Myotonic Dystrophy Foundation

Mike Hamlin, a one time avid cyclist with myotonic dystrophy, is inspiring folks to join him on this 100 mile ride October 9, 2010 as a part of the annual Sea Gull Century ride. Mike will be participating on this ride on his recumbent trike.

Registration is OPEN! The Myotonic Dystrophy Foundation (MDF) is pleased to announce its collaboration with the Paul and Sheila Wellstone Muscular Dystrophy Center at the University of Minnesota to present Empower 2010 - Myotonic Dystrophy Family Conference, August 13-15, 2010. This conference will bring important research updates, information about diagnosis, treatment, and daily living issues to assist individuals living with myotonic dystrophy, families, health care providers and the community. Print the Latest Agenda for Empower 2010 (updated on 7/15/10)

Jack Vassallo Fitzpatrick, Jack-a-Roo to his friends – loves trucks, Bob the Builder, telling jokes, and especially his twin sister, Ellie. Not so keen on chocolates and candy, though…he’s a bit of health nut. So rest assured, he will be on the sidelines cheering when his family and friends run the Austin Half Marathon on February 14, 2010 in his honor.  Their goal is simple – to appeal to you for help and to support research to find a cure for myotonic dystrophy, a condition effecting Jack and close to a million people worldwide. They'll be lacing up their running shoes, but more important than running, is support and donations – and that’s where you come in. Please help by donating to the Myotonic Dystrophy Foundation in Jack’s name.

Visit the Running For Jack website to learn more.

You are invited to the 9th annual family conference on myotonic dystrophy, October 3-4, 2009 in Manhattan Beach, California.  The sponsoring groups are bringing important research updates, information about diagnosis, treatment, and daily living issues to assist individuals living with myotonic dystrophy, families, healthcare providers and the community...more

 The International Myotonic Dystrophy Consotium (IDMC) is holding it's 7th annual conference (IDMC-7) on myotonic dystrophy, September 9 - 12, 2009, in Würzburg, Germany.

100 Years after the first description of myotonic dystrophy by Hans Steinert (Leipzig, Germany), IDMC-7 congress chairmen, are delighted to invite you to the city of Würzburg. Würzburg is deeply linked to one of the original describers of DM2, Kenneth Ricker. In memory of both scientists, they are pleased to invite you to join this anniversary congress in September, 2009.

Mark your calendars!  You are invited to the 8th annual family conference on myotonic dystrophy, September 19-21, 2008 in Manhattan Beach, California.  The sponsoring groups are bringing important research updates, information about diagnosis, treatment, and daily living issues to assist individuals living with myotonic dystrophy, families, healthcare providers and the community.

Print the 2008 Family Conference Registration Form

IDMC-6, September 12-15, 2007 in Milan, Italy