Myotonic Dystrophy Foundation

Print the 2008 Family Conference Registration Form

Mark your calendars!  You are invited to the 8th annual family conference on myotonic dystrophy, September 19-21, 2008 in Manhattan Beach, California.  The sponsoring groups are bringing important research updates, information about diagnosis, treatment, and daily living issues to assist individuals living with myotonic dystrophy, families, healthcare providers and the community.  This page will be updated as new infomation is available about the conference so check back again soon for an update.

University of Southern California (USC-KECK) School of Neurology

St. Francis Medical Center (SFMC)

Muscular Dystrophy Association (MDA)

Myotonic Dystrophy Foundation (MDF)

A Healthy Life for Everyone (AHLIFE)

Myotonic Dystrophy Assistance and Awareness Support Group (MDAASG)

 together present the

2008 Myotonic Dystrophy Family Conference

 “YEAR OF THE CHILDREN”

Friday to Sunday, September 19-21, 2008
Marriott – Manhattan Beach  
1400 Parkview Avenue
Manhattan Beach, California 90266

Schedule of Events

 Friday, September 19, 2008

Evening Family Welcome Reception - Manhattan Beach Marriott - Under the Eaves

 Saturday, September 20, 2008

Young Adults All Day Retreat – Share life challenges and develop a 'support' network

Caregivers Breakfast Workshop - Workshop (For non affected caregivers of DM1 and DM2 individuals only)

Congenital and Childhood Family Luncheon – Workshop

DM1 and DM2 Affected Adult Luncheon – Workshop

MDAASG’s 2008 View to a Cure – Myotonic Horizon Fundraiser 
Food, wine tasting and auction at: Redondo Beach Performing Arts Center.  Civic Light Opera of South Bay Cities presents the opening night performance of “Bye-Bye Birdie".  Tickets can be purchased for $100 for both the fundraiser and performance.

Sunday, September 21, 2008

Young Adults All Day Retreat – addressing physical and social issues

Morning Medical CME Seminar – for healthcare providers, physicians, nurses, therapists and first responders

Afternoon Family Conference – for families and friends living with myotonic dystrophy  (CME available for this conference)

For a detailed agenda, print the 2008 family conference registration form

Accommodations

The MDAASG has blocked out rooms for the MMD Conference. Reservations for the blocked room rates will be taken between:
Wednesday, July 23, 2008 to Friday, August 29, 2008

Marriott - Manhattan Beach
1400 Parkview Ave.
Manhattan Beach, CA., 90266

Phone numbers to reserve rooms:
800-228-9290
310-546-7511

Rooms are reserved under
Muscular Dystrophy Association (MDA)

Blocked room rate:
$129.00

Print the 2008 Family Conference Registration Form