Myotonic Dystrophy Foundation

Other Muscular Dystrophy Organizations - European Union

Myotonic Dystrophy Support Group (MDSGUK)
The MDSGUK is a Myotonic Dystrophy Support Group with the goal to improve the quality of life for families and individuals with myotonic dystrophy. 
http://www.myotonicdystrophysupportgroup.org/

Scottish Muscle Network
The Scottish Muscle Network provides information on the muscular dystrophies including myotonic dystrophy.  View their clinical care card and guidelines for the use of anesthesia.
www.gla.ac.uk/muscle/

TREAT-NMD
TREAT-NMD is an international initiative bringing together some of the world's leading neuromuscular specialists in pan-European 'network of excellence' aimed at improving treatment and finding cures for patients with neuromuscular disorders.
http://www.treat-nmd.eu