The MDF went to Washington, DC, last week to represent the DM community and participate in the Rare Disease Legislative Advocates Conference and Lobby Day.
Order an MDF Toolkit
Order an MDF Toolkit and receive valuable information compiled by MDF and our scientific and medical advisors to educate people living with DM, their medical providers and caregivers. This one-of-a-kind document provides you with specifics on:
- How DM affects your body
- The genetics of DM
- Strategies and information for managing and living with DM
- Additional resources
- A checklist to take to your doctor's office
- Information directed to your physician(s) and medical professional(s) to help them understand your disorder and symptoms, and much more.
You'll also receive Myotonic Dystrophy: The Facts, an easy-to-read book by Dr. Peter Harper, a medical alert wallet card and a medical history sheet. And we'll send you monthly email updates that include articles on myotonic dystrophy, the latest medical advances, programs and updates from MDF, and much more.
To download and print the MDF Toolkit as a PDF, click here.