Our Team

Finding a treatment or cure for myotonic dystrophy can't happen without uniquely qualified individuals who are dedicated to the cause. The exceptional people we call on each day are what keep us moving forward towards treatments.

Open Positions

MDF currently has openings for very seasoned and qualified professionals, including a Development Director, a Community Programs Director and an Operations Director. For more information on the Operations Director position, click here. For information on the Development Director and Community Programs Director positions, please contact Eunice Azzani, Azzani Search, at eazzani@azzanisearch.com or (415) 293-8181. Thank you for your interest in MDF.

Board of Directors

The Foundation's Board of Directors is comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.

Medical and Scientific Advisory Committee

The Foundation's Medical and Scientific Advisory Committee is a group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference. 


The Foundation's staff leads the day-to-day operations of our organization, and works with the board to set and execute our strategic agenda.