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News and Stories


February 6, 2018

Linda Marshall has written a moving overview of her struggles to find a diagnosis for the problems her children faced, and the particular impact of brain-related symptoms on her family.

January 9, 2018

Community member and MDF support group facilitator Mindy Kim responded to MDF’s call to advocates to contact their Congressional leadership last month, and her letter to the editor was published in the Greensboro News & Record. 

January 9, 2018

MDF received fourteen applications from the U.S., Canada and Western Europe for the December fellowship proposal review, and is pleased to join with the Wyck Foundation to fund 4 new pre- and post-doctoral Fellows.

January 9, 2018

Expansion Therapeutics, a company founded on the basis of Dr. Matt Disney’s research, has received $55.3M in Series A financing to develop therapies for DM and other diseases.

January 9, 2018

MDF, in partnership with the Wyck Foundation and other donors, has announced $700,000 in funding to increase the number of sites in the Myotonic Dystrophy Clinical Research Network (DMCRN), and enable critically important new research.

January 9, 2018

MDF has been awarded a $1M donation by an anonymous family in the DM community to launch development of gene editing technology to pursue the search for a cure for DM1.

January 7, 2018

Discovery of the holy grail for DM therapy development-- drug registration endpoints -- lies in the dogged pursuit and sharing of natural history data.

December 11, 2017

NINDS announces its intent to issue Funding Opportunity Announcements to support analytical validation of identified candidate biomarkers.


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