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March 13, 2017

A potentially revolutionary technology may allow development of a drug for DM that can correct a patient’s DNA by selectively removing the expanded CTG and CCTG repeats in DM1 and DM2, respectively.

February 24, 2017

Clinical trials involve substantial investments by drug developers, but especially by DM patients and families. Clinical trials proposed for our community must have adequate scientific rationale behind them.

February 24, 2017

MDF runs down some important changes in the purposes and rationale of NINDS funding mechanisms for postdoctoral fellows.

February 24, 2017

FDA released an online course to accompany their draft guidance on how to best communicate with the Agency in preparing and filing an IND.

February 13, 2017

MDF's youngest fundraiser? Six-year-old Asher Adleberg! The MDF community has done an amazing job of hosting parties, golf tournaments, crawfish boils, foot races and other events to support Care and a Cure for DM. We have some amazing stories to share, and some fun upcoming events you might want to put on your calendar.

 

February 2, 2017

When Dr. Thurman Wheeler was a resident in neurology, he remembers a senior physician telling him that myotonic dystrophy would probably be one of the most difficult diseases to treat because it involves so many body systems.

January 31, 2017

In 2016, MDF’s Warmline received many phone calls from MDF community members who struggled to complete the application process for federal and state disability benefits, and who needed guidance on how to navigate the complex application process.

January 24, 2017

Participation in research studies and clinical trials is critical to finding therapies for myotonic dystrophy. As part of the Every Body Counts! campaign, MDF will highlight DM community members who have proactively participated in research studies and clinical trials. Read about Zenica Sanford.

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