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Community members discuss daily living strategies for motivating their adult children living with juvenile-onset DM1.

Please note: This is an audio recording only. To view the accompanying presentation, please click here.

Three community members living with DM1 discuss daily living strategies and ways to cope and manage the disease.

Note: this is an audio recording only. To see the slides that accompany this presentation, please click here.

Dr. Laurence Mignon, PhD, Director of Clinical Development at Isis Pharmaceuticals, gives an update on the status of the DMPKrx Phase I/II trial.

Dr. Richard Moxley of the University of Rochester addresses different endocrine problems that challenge patients with mytonic dystrophy types 1 & 2, how they can lead to symptoms and be associated with alterations in blood test measurements, known treatments to mitigate potential symptoms and future opportunities to develop better understanding of these endocrine problems.

Community-led session presented by Lindsay Baran, Josh Crowder, and Leslie Krongold, EdD. Community members discuss the challenges of maintaining independence as DM progresses.

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