Digital Academy

Dr. Richard Moxley of the University of Rochester addresses different endocrine problems that challenge patients with mytonic dystrophy types 1 & 2, how they can lead to symptoms and be associated with alterations in blood test measurements, known treatments to mitigate potential symptoms and future opportunities to develop better understanding of these endocrine problems.

Community-led session presented by Lindsay Baran, Josh Crowder, and Leslie Krongold, EdD. Community members discuss the challenges of maintaining independence as DM progresses.

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Community-led session presented by Mindy Kim, Saurabh Rai, and Amy Ream. They discuss different ways of adapting exercise to maintain an active and healthy lifestyle.

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Community-led session presented by Regina Thompson and Jessica Nussbaum. Two caregivers discuss different ways of preparing food for those with dysphagia.

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Community-led session presented by Diane Bade, Chuck Hunt, and Larry Lord. Parents of adults living with juvenile-onset DM discuss the challenges specific to this group.

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