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Digital Academy

 

On Monday, November 7, 2016, the Myotonic Dystrophy Foundation (MDF) hosted the webinar "Living Long, Living Well: A Current Approach to Palliative Care." During the webinar, Dr. Anne Broderick and Dr. Laurie Gutmann discussed case studies involving palliative care. Additionally, they discussed when to begin that type of care, as well as common misconceptions about palliative care.

 

There are many heroes in the MDF community, from the people living with this disease to their caregivers, physicians and the researchers who focus on developing therapies and better disease understanding every day. Watch this moving short film to hear a few of these heroes described and celebrated.

 

Dr. Lauren Wood, director of neuromuscular research in the rare disease research unit at Pfizer, Inc., presents an overview of the progress achieved in DM1 drug development at Pfizer to date, and anticipated next steps for clinical trial development – at the 2016 MDF Annual Conference.

 

Dr. Cynthia Gagnon, Ph.D., a professor and member of the interdisciplinary research group on neuromuscular disorders at the University of Sherbrooke in Quebec, CA.

 

Dr. Karen Blakemore, M.D., director of prenatal genetics at the Prenatal Diagnostic Center in the Johns Hopkins Department of Gynecology and Obstetrics, Julie Cohen, certified genetic counselor in the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute, and Alice Schindler, MS, genetic counselor at the National Institutes of Neurological Disorders and Stroke (NINDS), provide a comprehensive overview of family planning strategies and considerations for families living with myotonic dystrophy – at the 2016 MDF Annual Conference.

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