Digital Academy

The Myotonic Dystrophy Foundation presents a training video for clinical trials participants, presented by Dr. Bruce Wentworth of Genzyme, and Jeanne Dekdebrun and Elizabeth Luebbe of the University of Rochester.

In this webinar, Dr. Bruce Wentworth of Genzyme and Jeanne Dekdebrun and Elizabeth Luebbe of the University of Rochester discuss an overview of the clinical trials process.

Community-led session presented by Regina Thompson and Jessica Nussbaum. Two caregivers discuss different ways of preparing food for those with dysphagia.

View the MDF Dysphagia Cookbook

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Community-led session led by Sarah Berman, Erica Kelly, and Catherine Wycoff, DPT, GCFP, ABMCP. Parents of children living with DM and a hippotherapy specialist discuss the benefit that this type of therapy can often have.

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Community-led track presented by Kristin Korsgaard and Richard Weston, discussing challenges facing caregivers.

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