The MDF went to Washington, DC, last week to represent the DM community and participate in the Rare Disease Legislative Advocates Conference and Lobby Day.
Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of the multidisciplinary team necessary for the comprehensive management of children and adults with DM. Other professionals that may also be involved include respiratory therapists, orthotists and durable medical equipment providers/specialists.
Click on the links above for more information and resources on physical therapy and occupational therapy guidelines.