The MDF is committed to raising awareness about DM and the community with members of Congress and important federal agencies like the FDA. This year our goal is to expand our engagement with key stakeholders in Congress, federal and state agencies, medical professionals and the media and we need your help!
Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of the multidisciplinary team necessary for the comprehensive management of children and adults with DM. Other professionals that may also be involved include respiratory therapists, orthotists and durable medical equipment providers/specialists.
Click on the links above for more information and resources on physical therapy and occupational therapy guidelines.