Rehabilitation Resources

As you have already read, myotonic dystrophy is a progressive disorder that affects multiple systems of the body. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore, management of the disease symptoms is essential to overall well being of the individuals with myotonic dystrophy. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of the multidisciplinary team necessary for the comprehensive management of children and adults with DM. Other members that may also be involved include respiratory therapists, orthotists and durable medical equipment providers/specialists.