Occupational Therapy Guideline References
REFERENCES:
1. Cup EHC, Sturkenboom IHW, Pieterse AJ, et al. The evidence for occupational therapy for adults with neuromuscular diseases: a systematic review. OTJR: Occupation, Participation & Health 2008;28:12-8.
2. Gagnon C, Noreau L, Moxley RT, et al. Towards an integrative approach to the management of myotonic dystrophy type 1. J Neurol Neurosurg Psychiatry 2007;78:800-6.
3. Gagnon C, Mathieu J, Noreau L. Life habits in myotonic dystrophy type 1. J Rehabil Med 2007;39:560-6.
4. Ronnblom A, Forsberg H, Danielsson A. Gastrointestinal symptoms in myotonic dystrophy. Scand J Gastroenterol 1996;31:654-7.
5. Marcon M, Briani C, Ermani M, et al. Positive correlation of CTG expansion and pharyngoesophageal alterations in myotonic dystrophy patients. Ital J Neurol Sci 1998;19:75-80.
6. Natterlund B, Ahlstrom G. Problem-focused coping and satisfaction with activities of daily living in individuals with muscular dystrophy and postpolio syndrome. Scand J Caring Sci 1999;13:26-32.
7. Nitz JC, Burns YR, Jackson RV. Sit-to-stand and walking ability in patients with neuromuscular conditions. Physiotherapy 1997;83:223-7.
8. Gagnon C, Mathieu J, Jean S, et al. Predictors of disrupted social participation in myotonic dystrophy type 1. Arch Phys Med Rehabil 2008;89:1246-55.
9. Thomasen E. Myotonia: Aarhus: Universitetsforlaget; 1948.
10. Caughey JE, Myrianthopoulos NC. Dystrophia Myotonica and Related Disorders: Sprinfield. Ill: Charles C Thomas; 1963.
11. Natterlund B, Ahlstrom G. Activities of daily living and quality of life in persons with muscular dystrophy. J Rehabil Med 2001;33:206-11.
12. Andries F, Wevers CWJ, Wintzen AR, et al. Vocational perspectives and neuromuscular disorders. International Journal of Rehabilitation Research 1997;20:255-73.
13. Perron M, Veillette S, Mathieu J. La dystrophie myotonique: I. Caracteristiques socio-economiques et residentielles des malades. Can J Neurol Sci 1989;16:109-13.
14. Laberge L, Veillette S, Mathieu J, Auclair J, Perron M. The correlation of CTG repeat length with material and social deprivation in myotonic dystrophy. Clin Genet 2007;71:59-66.
15. WHO. International Classification of Functionning, Disability and Health : ICF. Geneva: WHO; 2001.
16. Cardol M, Brandsma JW, de Groot IJ, van den Bos GA, de Haan RJ, de Jong BA. Handicap questionnaires: what do they assess? Disabil Rehabil 1999;21:97-105.
17. Fougeyrollas P, Cloutier R, Bergeron H, Côté J, St-Michel G. The Quebec classification: Disability Creation Process. Lac-St-Charles, Quebec: International Network on the Disability Creation Process; 1999.
18. Sivaraman Nair KP. Life goals: the concept and its relevance to rehabilitation. Clin Rehabil 2003;17:192-202.
19. Levasseur M, Desrosiers J, Noreau L. Is social participation associated with quality of life of older adults with physical disabilities? Disabil Rehabil 2004;26:1206-13.
20. Johnston M, Nissim EN, Wood K, Hwang K, Tulsky D. Objective and subjective handicap following spinal cord injury: interrelationships and predictors. J Spinal Cord Med 2002;25:11-22.
21. Neistadt ME, Crepeau Blesedell E. Occupational Therapy. 9th ed. Philadelphie: Lippincott; 1998.
22. Cardol M, de Haan RJ, de Jong BA, van den Bos GA, de Groot IJ. Psychometric properties of the Impact on Participation and Autonomy Questionnaire The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA). Arch Phys Med Rehabil 2001;82:210-6.
23. Jette AM, Haley SM, Coster WJ, et al. Late life function and disability instrument: I. Development and evaluation of the disability component. J Gerontol A Biol Sci Med Sci 2002;57:M209-16.
24. Fougeyrollas P, Noreau L. Life Habits Measure - General Short Form LIFE-H 3.1). Lac St-Charles, Québec, Canada: INDCP; 2003.
25. Noreau L, Fougeyrollas P, Vincent C. The LIFE-H : Assessment of the quality of social participation. Technology and Disability 2002;14:113-8.
26. Dijkers MP, Whiteneck G, El-Jaroudi R. Measures of social outcomes in disability research. Arch Phys Med Rehabil 2000;81:S63-80.
27. Fougeyrollas P, Noreau L, Bergeron H, Cloutier R, Dion SA, St-Michel G. Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap. Int J Rehabil Res 1998;21:127-41.
28. Gagnon C, Mathieu J, Noreau L. Measurement of participation in myotonic dystrophy: reliability of the LIFE-H. Neuromuscul Disord 2006;16:262-8.
29. Harper P. Myotonic dystrophy. 3rd ed. London: WB Saunders; 2001.
30. Mathieu J, De Braekeleer M, Prévost C, Boily C. Myotonic dystrophy: clinical assessment of muscular disability in an isolated population with presumed homogeneous mutation. Neurology 1992;42:203-8.
31. Meola G, Sansone V, Perani D, et al. Executive dysfunction and avoidant personality trait in myotonic dystrophy type 1 (DM-1) and in proximal myotonic myopathy (PROMM/DM-2). Neuromuscul Disord 2003;13:813-21.
32. Veillette S, Perron M, Mathieu J, Prévost C, Hébert G. Socio-cultural factors influencing the spread of myotonic dystrophy in the Saguenay-Lac-Saint-Jean region of the province of Quebec (Canada). In: Genetics, Demography and Health, Minority Populations. London: The Macmillan Press Ltd; 1992:83-101.
33. Wilson WJ. The truly disadvantaged. Chicago: University of Chicago Press; 1987.
34. Wilkinson R, Marmot M. Social determinants of health: the solid facts. Geneva: World Health Organization; 1998.
35. Phillips MF, Mathieu J. Physical disability in myotonic dystrophy. In: Harper P, van Engelen B, Eymard B, Wilcox DE, eds. Myotonic Dystrophy: Present Management, Future Therapy. New York: Oxford University Press; 2004.
36. Aldehag AS, Jonsson H, Ansved T. Effects of a hand training programme in five patients with myotonic dystrophy type 1. Occup Ther Int 2005;12:14-27.
37. van der Kooi EL, Lindeman E, Riphagen I. Strength training and aerobic exercise training for muscle disease. Cochrane Database Syst Rev 2005:CD003907.
38. Trip J, Drost G, van Engelen BGM, Faber CG. Drug treatment for myotonia. Cochrane Database of Systematic Reviews 2006.
39. Hill M, Hughes T, Milford C. Treatment for swallowing difficulties (dysphagia) in chronic muscle disease. Cochrane Database Syst Rev 2004:CD004303.
40. van Engelen BGM, Brunner HG. Gastrointestinal dysfunction in myotonic dystrophy. In: Myotonic Dystrophy: Present Management, Future Therapy. New York: Oxford University Press; 2004.
41. Leonard RJ, Kendall KA, Johnson R, McKenzie S. Swallowing in myotonic muscular dystrophy: a videofluoroscopic study. Arch Phys Med Rehabil 2001;82:979-85.
42. Sigford BJ, Lanham RA, Jr. Cognitive, psychosocial, and educational issues in neuromuscular disease. Physical Medicine and Rehabilitation Clinics of North America 1998;9:249-70.
43. van Haastregt JC, de Witte LP, Terpstra SJ, Diederiks JP, van der Horst FG, de Geus CA. Membership of a patients' association and well-being. A study into the relationship between membership of a patients' association, fellow-patient contact, information received, and psychosocial well-being of people with a neuromuscular disease. Patient Educ Couns 1994;24:135-48.
44. Pieterse AJ, Cup EH, Knuijt S, et al. Development of a tool to guide referral of patients with neuromuscular disorders to allied health services. Part one. Disabil Rehabil 2008;30:855-62.
45. Pieterse AJ, Cup EH, Knuijt S, et al. Development of a tool to guide referral of patients with neuromuscular disorders to allied health services. Part two. Disabil Rehabil 2008;30:863-70.
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