Please join us in welcoming Conor Lynch to the MDF team! Conor is our new Program Associate assisting with program support, fund development support, day-to-day operations and IT.
The 6th Annual FAF Request for Applications - posted June 5, 2013
Starting June 5th, 2013, MDF is accepting applications for its Fund-a-Fellow postdoctoral grant program. The Fund-a-Fellow program was designed to help MDF achieve its mission of Care and a Cure by attracting new researchers to the DM field, and increasing the knowledge and science available regarding myotonic dystropy.
This year, for the first time, an expanded list of scientific research endeavors will be eligible for fellowship support, including DM research efforts focused on care, treatment and support of the DM patient and the patient's family. Research focused on molecular biology and basic science in DM research will also continue to be eligible and encouraged.
MDF Fund-a-Fellow grants are for $100,000 each, disbursed over two years, and are awarded to postdoctoral students with doctoral degrees from accredited U.S. or international institutions. Applications from U.S. or internationally-based applicants will be accepted until 5:00 PM Pacific Time Friday, September 13, 2013. Click here or the Grant Applications link above for program Guidelines and the Application Form.
Past MDF Grant Awards
In January 2013, MDF awarded two $100,000 postdoctoral research fellowships, each providing two years of support at $50,000 per fellowship per year, through the Foundation's Fund-A-Fellow program. These awards are supporting new and innovative studies that are relevant to the pathogenesis of DM, disease progression, best practices in clinical management of the disorder, and therapeutic and diagnostic development for myotonic dystrophy. Learn more about our current and past grant recipients.
In 2012, MDF awarded a multi-year grant to support the creation of the first Myotonic Dystrophy Clinical Research Network (DMCRN), a collaborative effort led by Dr. Charles Thornton of the University of Rochester Medical Center. The DMCRN, which will launch in 2013, will be comprised of five university-based centers with expertise in DM research.
MDF also awarded four Fund-a-Fellow grant awards in 2012 to support innovative research in DM and bring new investigators into the field. Click here to learn more.
A key goal of the Myotonic Dystrophy Family Registry (MDFR) is to aid academic, biotech, pharma and other researchers in developing new, effective treatments for myotonic dystrophy. By joining the Registry, researchers and other professionals can access de-identified aggregate data to identify target populations for study planning or recruitment for research studies and clinical trials.
Registering a profile also provides access to explore the database and use the Registry’s data analysis and report capabilities to learn more about DM and the community of people living with it. The registry coordinator is also available to review draft recruitment notices and advertisements on behalf of the myotonic dystrophy community to offer feedback regarding content and language. Click here to go to the MDFR website, learn more and sign up.