Research Grants for Myotonic Dystrophy

The Myotonic Dystrophy Foundation (MDF) is committed to our mission to lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

 As part of our mission, MDF raises funds for scientific inquiry and clinical research into the cause and treatment of this complex disease.

MDF Research Grants

2012-2013 Grant Application Submission Deadline Has Passed. The MDF has awarded four postdoctoral research fellowships, each providing two years of support at $50,000 per fellowship per year. These awards will support new and innovative studies that are relevant to the pathogenesis of DM, disease progression, best practices in clinical management of the disorder, and therapeutic and diagnostic development for myotonic dystrophy.  Applicants must be eligible for a postdoctoral position and have an interest in research in the field of myotonic dystrophy. They must have completed their degree requirements for an M.D., Ph.D. or D.O. prior to award activation in January 2012.  Learn more.

Learn more about our current and past grant recipients.

2013-2014 Grant Application Process will Begin Soon. Stay tuned for more information on the application process and timing.

DM Patient Registry

In 2000, the National Registry for Myotonic Dystrophy (DM) and Facioscapilohumeral Muscular Dystrophy (FSHD) was developed at the University of Rochester in Rochester, New York with funding from the National Institutes of Health (NIH). It was developed to facilitate research by making available to investigators anonymous data on Registry members, by helping investigators recruit subjects into their clinical studies, and by providing educational materials to patients and family members. By participating in research, patients can assist in finding answers to questions related to causes and symptoms of the disease in order to develop better treatments - and hopefully, one day, a cure for DM (and FSHD). Learn more about how to use the registry in your research.