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Speak Out to Congress

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Thank you for joining us as we rolled out our 2016 advocacy strategy and prepared to take action with a congressional call-in on Rare Disease Day, February 29, 2016. A recording of the webinar will be available soon. The slides for the webinar are available to view or download here.


Thursday, February 25, 2016

10 - 11 am (PST) / 1 - 2 pm (EST)



Thursday, February 25, 2016


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