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Disease Management

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

Creating a Medical Team for DM Care

Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.

Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

DM and Dental Care: the Neglected Health Risk

Darcy Trill, RDHAP, mobile dental hygenist who specializes in the treatment of people with disabilities and special needs in their homes, provides a compelling overview of the risks of ignoring dental health for DM patients, and strategies for achieving and maintaining oral health. From the 2017 MDF Annual Conference.

DM and Mental Health: Managing Anxiety, Depression and Other Symptoms

Dr. Melissa Dixon of the University of Utah discusses mental health challenges and symptoms sometimes experienced by people living with DM, and strategies for coping with everything from depression to anxiety and 'brain fog' From the 2017 MDF Annual Conference.

Beyond General Anesthesia: Opiates and Other Pain Meds

Dr. Jacinda Sampson, joined by Dr. Ian Bowler, presents on the complications experienced by people living with myotonic dystrophy when they are subjected to anesthesia and, as importantly, other pain medications that can create similar complications and risks. This is critically important information for every DM family member and attending clinician to know. From the 2017 MDF Annual Conference.

Occupational Therapy (2016 MDF Annual Conference)

Watch Occupational Therapy, a video from the 2016 MDF Annual Conference.

Family Planning (2016 MDF Annual Conference)

Watch Family Planning, a video from the 2016 MDF Annual Conference.

Pulmonary Considerations Session

Watch Pulmonary Considerations, a video from the 2016 MDF Annual Conference.

Meditation for Caregivers

In celebration of National Family Caregivers Month (November 2015), the Myotonic Dystrophy Foundation hosted a session on the benefits of having a meditation practice. The webinar was hosted by Dr. Genie Palmer, a former associate professor and researcher at Sofia University.

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