2019 MDF Annual Conference
Loews Philadelphia Hotel, Philadelphia, PA.
September 13 - 14, 2019
The Myotonic Dystrophy Foundation (MDF) is pleased to announce the 2019 MDF Annual Conference, taking place Friday, September 13 and Saturday, September 14, 2019, at the Loews Philadelphia Hotel in Philadelphia, PA. This year's conference program will include a host of sessions exploring research, drug development, disease symptom management, and provide formal and informal community networking opportunities.
An all-day Friday Professionals Track for industry and academia will provide closed sessions on a variety of current research topics, a Drug Development Roundtable, and more.
Professionals interested in attending the full-day meeting: CNS Outcome Measures Development Workshop, being held Thursday, September 12 at the Philadelphia Convention Center, need to register separately for this event. Click here for more information.
Registration Fee & Tickets
The 2019 Community Registration fee provides community member entrance to all 2019 MDF Annual Conference events, including general and breakout sessions, an evening social reception, meals and other special events, including:
- Friday First Timers' Tea
- Friday Opening Reception
- Saturday Grab and Go Breakfast
- Saturday Lite Lunch
- Saturday Closing Dinner and Dance Party
The Professional Registration fee provides entrance for DM professionals only to the Friday professional track, and lunch and coffee service, as well as the community events listed above.
Registering for the Conference does not reserve your hotel room, and space at the hotel is expected to fill up quickly. Please contact the hotel directly to book your room. Click here for more lodging details.
2019 MDF Annual Conference attendees will:
- Learn daily living and disease management strategies, and find new resources, products and services.
- Hear research and drug development progress updates.
- Create new friendships and support options via networking and community-building opportunities throughout the conference.
New to the MDF Annual Conference? MDF offers a First Timers' Tea for first-time attendees on Friday, September 13, 2019. A special feature of the First Timers' Tea is our Mentoring Program, which will partner interested first time attendees with MDF Board members and others who have attended many MDF Annual Conferences and can help ensure that your first experience is a complete success.
The Conference also features programming for adult caregivers, adults living with juvenile-onset DM, parents of children with congenital and childhood-onset myotonic dystrophy, advocacy training, and much more. New sessions include:
- Going to School with Myotonic Dystrophy: Understanding Special Education & I.D.E.A
- Myotonic Dystrophy & Accessing the World of Work
- First Timers’ Tea
- Adaptive Chair Yoga
- Emergency Preparedness
- Genetics & Family Planning
- Financial Planning & DM
- Professionally-staffed Listening Room
- And more!
MDF has designed a full-day professional track at the MDF Annual Conference on Friday, September 13 featuring session topics that include:
- DM Biomarkers: Goals, What's Working and How They'll Be Used for Drug Development and Approval
- Current Therapeutic Approaches
- Study and Trial Learnings to Date: Observations on Design, Endpoints and Patient Enrichment Strategies
- DM2 State of the Science: Current Research and Next Steps
- FDA: Current Thinking on the Orphan Disease Regulatory Pathway: Insights on Surrogate Biomarkers, CNS and Muscle Endpoints & Accelerated Approval
- DM Animal Models: What We Have, What We Need, and Why
- And more!
There will also be a poster session attended by both scientific and patient/family attendees during the Welcome Reception (Friday, September 13 from 5:30 PM to 7:30 PM). Academic and industry researchers are encouraged to submit abstracts to this unique event.
CNS Outcome Measures Development Workshop
MDF will host a full-day workshop, Thursday, September 12 focused on the need for CNS outcome measures for myotonic dystrophy for academic, industry and other DM professionals. This session, which is free to the professional community, will be held at the Philadelphia Convention Center, a block from the Conference hotel. Separate registration is required.
The 2019 MDF Annual Conference takes place at the Loews Philadelphia Hotel, which is located in the heart of Center City Philadelphia. The hotel offers comprehensive services for guests. More hotel information is available here.
The discounted room block for the 2019 MDF Annual Conference is expected to fill up quickly! We recommend that you reserve your room as soon as possible to secure the best rates. There are a number of city-wide conferences going on in Philadelphia at this time, and hotel rooms were sold out by March 1st at a number of hotels around the Loews Philadelphia.
Registering for the conference does not reserve your hotel room.
Interested in other accessible options in the area? Find more choices at AccessibleGo.
2019 MDF Annual Conference attendees will arrive in Philadelphia at the Philadelphia International Airport (PHL). Visitors seeking transportation to the Loews Philadelphia Hotel have a variety of options, including taxi service, ride-sharing apps, and public transportation.
Conference attendees are responsible for making their own airfare and transportation arrangements to and from the hotel. MDF cannot reimburse travel, hotel accommodations or parking expenses for Conference participants.
Find additional accessible transportation options with AccessibleGo.
Childcare is not provided by MDF at the Conference. Please make all necessary arrangements before you arrive so that you can take advantage of all that the Conference has to offer. Contact Care.com for information on local caregivers and availability. You may also inquire at Child Care Information Services of Philadelphia if you prefer to use a local service. MDF members traveling with young children can also visit the MDF Facebook page to solicit interest in sharing childcare with other conference attendees.
Registration Cancellation and Refund Policy
We understand that circumstances can change. MDF contracts for conference presenters, travel and hotel services nine to twelve months in advance, and adjusts those contracts based on registrations. We are therefore unable to process registration cancellations made after Tuesday, August 13, 2019.
See the conference program and learn more about the Loews Philadelphia Hotel. If you have registration questions or need assistance with registration, contact the Myotonic Dystrophy Foundation at 415-800-7777 or by email.