This summer, a cross-country journey is capturing hearts and uniting motorcycle enthusiasts, rare disease advocates, and families impacted by DM. Patrick "Pat" Cornell—a 60-year-old Navy veteran, 9/11 first responder, and retired firefighter—is riding 125,000+ miles in 125+ days to raise awareness and funds for MDF!

For the second year in a row, thanks to the work of MDF advocates across the country, 6 U.S. Senators signed Senator Amy Klobuchar’s (D-MN) letter to the Senate Appropriations committee in support of our request for $10 million in new DM research funding as part of the Congressionally Directed Medical Research Program.

MDF is excited to highlight the work of two MDF interns, who are contributing to MDF's mission of Community, Care, and a Cure this summer! We appreciate all of their enthusiasm to improve our support of the DM community! 

Dr. Arianna Tucci’s research focuses on advancing genomic medicine in rare diseases by analyzing large-scale human genomic data and translating findings into clinically relevant applications. In recent years, she has developed expertise in analyzing short DNA repeats across human genomes, with a particular emphasis on repeat expansion disorders. Her combined expertise in clinical human genetics and genomics has contributed to significant advancements in the field. Dr. Tucci remains committed to improving the diagnosis and care of patients affected by repeat expansion disorders.