On September 2, 2025, Patrick “Pat” Cornell—known to many as Vroom Old Man—rolled into Indian Motorcycle of Southeastern Virginia in Newport News, VA. There, he officially crossed the finish line of his original goal: 125,000 miles in 125 days, a record-breaking motorcycle ride that united riders, rare disease advocates, and families affected by myotonic dystrophy (DM).

Thank You for Helping Us Reach New Heights at the 2025 MDF Gala! MDF is thrilled to announce that our 2025 Gala raised a record-setting $2 million to accelerate research, expand care, and strengthen support for families living with myotonic dystrophy (DM) around the world!

The Myotonic Dystrophy Foundation (MDF) extends a heartfelt thank you to everyone who participated in our DM INSIGHT surveys. Your input is essential to helping us better understand the real-world experiences of people living with myotonic dystrophy (DM1 or DM2) and their healthcare providers.

In celebration of the 5th Annual International Myotonic Dystrophy Awareness Day, our incredible community members and partners from all around the world dressed for the occasion and lit their local and national monuments in green.