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Clinical Resources

MDF offers resources and information for clinicians treating people living with myotonic dystrophy. Below you will find:

  • First-ever clinical care recommendations for adults living with myotonic dystrophy type 1, including a full document and a 4-page Quick Reference Guide. MDF will release clinical care recommendations for adults with myotonic dystrophy type 2, congenital and childhood-onset DM1 in late 2018. Additional recommendations for cardiologists and pulmonologists will also be released in late 2018 or early 2019.
  • Anesthesia guidelines
  • Guidelines for physical and occupational therapists
  • Nursing recommendations

Links to Clinical Resources:

Pending Consensus-based Care Recommendations:

  • Consensus-based Care Recommendations for Adults with Myotonic Dystrophy Type 2 - PENDING
  • Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1 - PENDING
  • Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1 - PENDING
  • Consensus-based Care Recommendations for Pulmonologists Treating Adults with Myotonic Dystrophy Type 1 - PENDING

Questions? Contact MDF for more information.

 

 

 

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