Support the DM community—one letter at a time.

Many people living with myotonic dystrophy (DM) experience social isolation and find it hard to stay connected. Through Community Connections, you can brighten someone’s day by sending a heartfelt letter, drawing, or story—and remind them that they are not alone.

You can also nominate a community member to receive a special MDF Care Package filled with kind messages from across the DM community.
 

MDF is excited to announce the latest recipients of our Community Connections program!

• Josephine lives in Ontario, Canada, and enjoys eating good food, even better when it's also healthy! Right now, she is loving Filipino food. She is interested in travel, yoga, meditation and art. When she's able to Josephine loves taking walks in the forest and woods. Share a recipe, a story from your recent travel or vacation, or just a note saying hi!
• Janice lives in the Midwest, she likes to read and cook. When she's able, she also enjoys going for drives. She spends time keeping up with her family, but seeing as most of them live out of town, it's nice to get letters and notes from other community members! Feel free to send a recipe or book recommendation or note saying hello.

Write a Letter, Share a Smile

Send a message that matters. You don’t need to know the recipient—just write from the heart. Share a story, draw a picture, tell a joke, or simply send a note of encouragement.

How to Send Your Message

Email:
Send to info@myotonic.org
Use the subject line: Community Connections
Typed messages will be printed and added to a care package.

Mail:
Myotonic Dystrophy Foundation
Attn: Community Connections
663 13th Street, Suite 100
Oakland, CA 94612

What to Include (and What to Avoid)

DO:

• Write from the heart
• Share jokes, comics, or uplifting stories
• Include drawings, poems, or creative messages
• Talk about shared interests like music, pets, or hobbies

DON’T:

• Include religious or political content
• Use glitter, confetti, or hard-to-clean materials
• Write in very small or hard-to-read handwriting
   

Why It Matters

Your words can make a world of difference. Every message is a reminder that someone is seen, supported, and part of a caring community. Whether you write once or make it a monthly habit, you’re helping build connection and hope for people affected by DM.

Join Community Connections today—because every smile starts with a small act of kindness.

Nominate a Community Member

Know someone who could use a little extra encouragement? Nominate a person living with or caring for someone with DM to receive a bundle of uplifting messages.

• Self-nominations are welcome.
• Quarterly care packages are delivered by MDF.

Nominate someone now: Click here to fill out the nomination form. >>>

Note: Not all nominees will be selected each quarter. If your nominee is chosen, you’ll receive a confirmation email.