Support the DM community—one letter at a time.
Many people living with myotonic dystrophy (DM) experience social isolation and find it hard to stay connected. Through Community Connections, you can brighten someone’s day by sending a heartfelt letter, drawing, or story—and remind them that they are not alone.
You can also nominate a community member to receive a special MDF Care Package filled with kind messages from across the DM community.
Nominate a Community Member
Know someone who could use a little extra encouragement? Nominate a person living with or caring for someone with DM to receive a bundle of uplifting messages.
- Self-nominations are welcome.
- Quarterly care packages are delivered by MDF.
Nominate someone now: Click here to fill out the nomination form. >>>
Note: Not all nominees will be selected each quarter. If your nominee is chosen, you’ll receive a confirmation email.
Write a Letter, Share a Smile
Send a message that matters. You don’t need to know the recipient—just write from the heart. Share a story, draw a picture, tell a joke, or simply send a note of encouragement.
How to Send Your Message
Email:
Send to info@myotonic.org
Use the subject line: Community Connections
Typed messages will be printed and added to a care package.
Mail:
Myotonic Dystrophy Foundation
Attn: Community Connections
663 13th Street, Suite 100
Oakland, CA 94612
What to Include (and What to Avoid)
DO:
- Write from the heart
- Share jokes, comics, or uplifting stories
- Include drawings, poems, or creative messages
- Talk about shared interests like music, pets, or hobbies
DON’T:
- Include religious or political content
- Use glitter, confetti, or hard-to-clean materials
- Write in very small or hard-to-read handwriting
Why It Matters
Your words can make a world of difference. Every message is a reminder that someone is seen, supported, and part of a caring community. Whether you write once or make it a monthly habit, you’re helping build connection and hope for people affected by DM.
Join Community Connections today—because every smile starts with a small act of kindness.