Support the DM community—one letter at a time.

Many people living with myotonic dystrophy (DM) experience social isolation and find it hard to stay connected. Through Community Connections, you can brighten someone’s day by sending a heartfelt letter, drawing, or story—and remind them that they are not alone.

You can also nominate a community member to receive a special MDF Care Package filled with kind messages from across the DM community.
 

MDF is excited to announce the first two recipients of our Community Connections program!

• John, a devoted Royals and Chiefs fan from the Midwest, is a proud uncle, brother, and son. He enjoys video games and family vacations. A year ago, he lost his brother and best friend, who also had DM. John would appreciate some kind, supportive messages during this time.
• Karen is a retired vocal coach and pianist who worked with professional singers. Formerly lived and worked in Manhattan, now she lives in the mid-Atlantic region. Share your stories, aspiring song lyrics, or just a friendly note! Brighten someone’s day by sending a heartfelt letter, drawing, or story—and remind them that they are not alone.

Write a Letter, Share a Smile

Send a message that matters. You don’t need to know the recipient—just write from the heart. Share a story, draw a picture, tell a joke, or simply send a note of encouragement.

How to Send Your Message

Email:
Send to info@myotonic.org
Use the subject line: Community Connections
Typed messages will be printed and added to a care package.

Mail:
Myotonic Dystrophy Foundation
Attn: Community Connections
663 13th Street, Suite 100
Oakland, CA 94612

What to Include (and What to Avoid)

DO:

• Write from the heart
• Share jokes, comics, or uplifting stories
• Include drawings, poems, or creative messages
• Talk about shared interests like music, pets, or hobbies

DON’T:

• Include religious or political content
• Use glitter, confetti, or hard-to-clean materials
• Write in very small or hard-to-read handwriting
   

Why It Matters

Your words can make a world of difference. Every message is a reminder that someone is seen, supported, and part of a caring community. Whether you write once or make it a monthly habit, you’re helping build connection and hope for people affected by DM.

Join Community Connections today—because every smile starts with a small act of kindness.

Nominate a Community Member

Know someone who could use a little extra encouragement? Nominate a person living with or caring for someone with DM to receive a bundle of uplifting messages.

• Self-nominations are welcome.
• Quarterly care packages are delivered by MDF.

Nominate someone now: Click here to fill out the nomination form. >>>

Note: Not all nominees will be selected each quarter. If your nominee is chosen, you’ll receive a confirmation email.