Contact Us

We want to hear from you, and we have several ways for you to connect with us.

You can mail us at our office:

Myotonic Dystrophy Foundation
663 Thirteenth Street, Suite 100
Oakland, CA 94612

You can email us at

You can call us toll free at 866-968-6642 (US only)

Our direct line is 415-800-7777.

You can sign up for our monthly newsletter, and you can ensure we can always find you by updating your contact information.