Mi nombre es David Kugler, nací y crecí en Venezuela, y tengo desde 1996 viviendo en Estados Unidos - desde el 2019 vivo en Philadelphia con mi esposa, 2 hijos y Honey nuestra Golden Retriever. Me gusta viajar, hacer parrilladas y jugar al pickleball. Mi hija tiene CDM, y fue diagnosticada a los 7 años después de más de 6 meses de exámenes y citas médicas. Conocimos MDF en el 2011, cuando asistimos a nuestra primera conferencia, y desde ese momento hemos colaborado con MDF en diversas actividades como recaudar fondos para investigación, participar en reuniones con congresistas.
David Kugler is one of the co-facilitators for the International Spanish speaking support group along with Ms. Araceli Mera. He was born and raised in Venezuela, but has lived in the United States since 1996. Since 2019, David, his wife, two children and their Golden Retriever, Honey, have been living in Philadelphia, PA. David likes to travel, barbecue and play pickleball. His daughter is living with the congenital form of myotonic dystrophy type 1 (CDM), and was diagnosed at age 7 after 6 months of examinations and doctor appointments. David's family met MDF in 2011, when they attended their first MDF Annual Conference, and have been incredible collaborators and volunteers since! The Kugler-Esparis family has support MDF through a wide variety of activities such as raising funds for research, reviewing Spanish language resources, and participating in advocacy meetings with congressmen.