Home / Digital Academy / Digital Academy: Community Favorite

Digital Academy: Community Favorite

Preview Title Date Type
"Hands" featuring Eric Hutchinson

Directed by Doug Thomsen and Adam Behrmann.

Award-winning recording artist & MDF community member Eric Hutchinson released the song "Hands" on his new album "Modern Happiness" in partnership with MDF! Eric developed the song & video to share his family story & help raise awareness about DM & critically-needed funds for MDF.

"hands" is the most personal song from my new album, Modern Happiness, which I wrote as a tribute to my dad who is living with myotonic muscular dystrophy, or DM. DM is a disease that has affected my dad and my family for over 35 years, but was never something we really talked about. “hands” is a song about being seen and heard as a disabled person.

I teamed up with the Myotonic Dystrophy Foundation to create this video as part of a campaign to raise awareness of the disease and how we can get together to fight it.

11/2/18 video
Living with DM: The Community Speaks

MDF community members speak about the impact that living with DM has on their lives.

9/18/18 video
Dr. Moxley Retirement 2018

MDF created a short video to recognize and celebrate Moxley’s incredible commitment and impact on the treatment of myotonic dystrophy and scientific discovery to drive disease understanding and therapy development. “Mox” is in many ways irreplaceable, functioning as a singular force in the myotonic dystrophy field for over four decades.

Read more about the tribute to Dr. Moxley.

7/10/18 video
DM Heroes

There are many heroes in the MDF community, from the people living with this disease to their caregivers, physicians and the researchers who focus on developing therapies and better disease understanding every day. Watch this moving short film to hear a few of these heroes described and celebrated.

10/26/18 video
Sleep Issues Associated with DM

Dr. Chad Ruoff of the Stanford Center for Sleep Science and Medicine discusses common sleep issues associated with myotonic dystrophy, and ways to manage these symptoms.

11/2/18 video
Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

6/29/18 video
DM & Anticipation, Part 1

Dr. Darren Monckton describes anticipation in myotonic dystrophy, the process by which the disease increases in severity as it is passed from generation to generation.

Watch Part 2 of this series

6/29/18 video
The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

6/29/18 video
Introduction to DM

Darren Monckton, B.Sc., Ph.D., University of Glasgow

6/29/18 video

Partners

ExpansionTherapeutics.png

© Myotonic Dystrophy Foundation. All rights reserved.