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Advocate for Myotonic Dystrophy Research Funding

Published: March 1, 2024

Learn more about MDF’s Advocacy Priorities and our new “Action Center”! In this webinar, MDF’ Washington, D.C. based advocacy consultant, Kevin Brennan, leads a panel discussion with MDF advocates (Mark Planco, Belen Esparis, and Haley Martinelli) about strategies for raising awareness and driving US federal funding to DM research. He also unveils our plans to secure $10 million in new DM research funding as part of the Congressionally Directed Medical Research Program (CDMRP). Click here to Contact your Representatives in a single easy step! >>>

Join MDF Advocates across the U.S. who are making their voices heard in Congress! Please email your Senators and Representatives asking them to support $10 million in new DM research funding as part of the Congressionally Directed Medical Research Program (CDMRP)! In a few weeks, MDF Advocates will also be asking Senators to make DM eligible for research awards under the Senate initiated Peer Reviewed Medical Research Program (PRMRP). If we are successful, this will be the 8th year in a row DM has been included in PRMRP which has awarded $24 million in new DM research grants since 2018.