Originally presented on September 10th, 2021 as a part of the Professionals Track at the 2021 Virtual MDF Annual Conference.
MDF is pleased to present special research, data, and funding opportunity updates for DM professionals. The Marigold Foundation presents findings of a recent study of health resource utilization from claims data. Ms. Street will present an overview of MD STARnet, sociodemographic and clinical description of the myotonic dystrophy population in four U.S. States, and the direction of current and future MD STARnet research. Glen Nuckolls and Emily Carifi will supply an overview of NINDS and NIAMS supported DM research and describe the different areas of disease research NIH supports, and give a brief overview of NIAMS specific research areas and a brief primer of NIH opportunities for investigators
- Emily Carifi, PhD
- Sarah Howe, MBA
- Glen Nuckolls, PhD
- Natalie Street, MS, CGC