|Applying for Disability Benefits||
Watch Applying for Disability Benefits, a video from the 2016 MDF Annual Conference.
|Creating a Medical Team for DM Care||
Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.
|Bringing the Patient Voice to CNS Targeting Drug Development 2: Industry Observations and Feedback||
Video #2 from the session: Bringing the Patient Voice to CNS Targeting Drug Development in DM. Dr. Gersham Dent, a neuroscientist working on the DM1 drug development program at Biogen, provides observations on panelists' CNS symptom experiences with regard to possible endpoint identification for future clinical trials of CNS-targeting therapies. From the 2017 MDF Annual Conference.
|Gastrointestinal Health (2014 MDF Annual Conference)||
Linda Nguyen, MD, of Stanford University, discusses GI health as it relates to myotonic dystrophy, and ways to combat these symptoms.
|Pulmonary Considerations Session||
Watch Pulmonary Considerations, a video from the 2016 MDF Annual Conference.
|DM & Anticipation, Part 2||
Dr. Darren Monckton describes anticipation, the process by which the disease increases in severity as it is passed from generation to generation, a unique feature of myotonic dystrophy.
|Understanding SSA Compassionate Allowance for CDM||
In 2017, MDF finally achieved one of its goals for the community when congenital myotonic dystrophy was added to the Compassionate Allowance Program for Social Security Disability. Join us for an informational webinar with SSA representative Deborah Dennis, who will explain how this new development affects the DM community and what will change in the application process going forward.
|Vision & Eye Health (2014 MDF Annual Conference)||
Todd Goodglick, MD, of Washington Eye Physicians, discusses common ophthalmological issues resulting from myotonic dystrophy and what can be done to address these symptoms.
|Transitioning to Adulthood (2016 MDF Annual Conference)||
Watch Transitioning to Adulthood, a video from the 2016 MDF Annual Conference.
|The DM Check Up - Best Practices||
Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.