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Digital Academy

Preview Title Date Type
Applying for Disability Benefits

Watch Applying for Disability Benefits, a video from the 2016 MDF Annual Conference.

11/2/18 video
Creating a Medical Team for DM Care

Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.

4/16/18 video
Bringing the Patient Voice to CNS Targeting Drug Development 2: Industry Observations and Feedback

Video #2 from the session: Bringing the Patient Voice to CNS Targeting Drug Development in DM. Dr. Gersham Dent, a neuroscientist working on the DM1 drug development program at Biogen, provides observations on panelists' CNS symptom experiences with regard to possible endpoint identification for future clinical trials of CNS-targeting therapies. From the 2017 MDF Annual Conference.

5/15/19 video
Gastrointestinal Health (2014 MDF Annual Conference)

Linda Nguyen, MD, of Stanford University, discusses GI health as it relates to myotonic dystrophy, and ways to combat these symptoms.

5/16/19 video
Pulmonary Considerations Session

Watch Pulmonary Considerations, a video from the 2016 MDF Annual Conference.

10/26/18 video
DM & Anticipation, Part 2

Dr. Darren Monckton describes anticipation, the process by which the disease increases in severity as it is passed from generation to generation, a unique feature of myotonic dystrophy.

5/15/19 video
Understanding SSA Compassionate Allowance for CDM

In 2017, MDF finally achieved one of its goals for the community when congenital myotonic dystrophy was added to the Compassionate Allowance Program for Social Security Disability. Join us for an informational webinar with SSA representative Deborah Dennis, who will explain how this new development affects the DM community and what will change in the application process going forward.

5/17/19 video
Vision & Eye Health (2014 MDF Annual Conference)

Todd Goodglick, MD, of Washington Eye Physicians, discusses common ophthalmological issues resulting from myotonic dystrophy and what can be done to address these symptoms.

4/16/18 video
Transitioning to Adulthood (2016 MDF Annual Conference)

Watch Transitioning to Adulthood, a video from the 2016 MDF Annual Conference.

11/2/18 video
The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

6/29/18 video

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