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IMPORTANT: Find all anesthesia guides for individuals and their families and healthcare professionals

Digital academy

Discover expert-led videos and educational content designed to help individuals and families better understand, manage, and navigate life with myotonic dystrophy.

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Newly diagnosed

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Dyne Therapeutics - Meet the DM Drug Developers 2026

Published: October 27, 2026

Ask-the-Expert: Disability protections & myotonic dystrophy

Published: October 22, 2026

Learn about disability protections with Marisa Spain, a disability justice advocate living with FSHD, a form of muscular dystrophy.
Clinical trials & drug approval

Understanding Clinical Trials and Myotonic Dystrophy

Published: October 21, 2026

Learn more about what recent clinical trial results mean for future treatments and therapies for myotonic dystrophy (DM).

Ask-the-Expert: Social security & myotonic dystrophy

Published: October 13, 2026

Community voices & inspiration

How to Secure a Proclamation for Myotonic Dystrophy Awareness Day

Published: September 14, 2026

Whether you request a proclamation, contact your Senators, or take both actions, your voice can help increase awareness!
Clinical trials & drug approval

Pharma Day with Euro-DyMA - IDMC-15

Published: August 19, 2026

The 6th Edition of Pharma Day was presented in partnership by Euro-DyMA and MDF at IDMC-15