Dr. John Day welcomed more than 100 people to the Stanford University School of Medicine's first annual California Myotonic Dystrophy Information Meeting on February 1, 2014.
Attendees - some newly diagnosed and many who had never met others diagnosed with DM - traveled from across western states to attend, some from as far away as Portland, Oregon.
Jennifer Fisher, the Neuromuscular Community Outreach Liaison at Stanford, said one of the goals for the annual meeting is not only to help patients but also "to build partnerships with other neuromuscular centers and promote the great clinical work and research in the DM field."
There were a number of sessions presented by more than 10 specialists and doctors, as well as Lisa Harvey, Daniel Fortuno, and Leslie Krongold. Based on attendee feedback, "The Role of Sleep Specialists and Myotonic Dystrophy," presented by Dr. Chad Ruoff, was one of the many sessions that were well received. "Dr. Ruoff is dynamic, engaging, and presents information in an entertaining way that everyone can understand," Fisher says.
The 2015 meeting will be hosted by the University of California, Irvine, in Southern California.