JOA Caregivers - Virtual Meeting | Myotonic Dystrophy Foundation

Join us for JOA Caregivers Virtual Meeting!

Every 3rd Tuesday of the Month
11:00 AM - 12:00 PM Mountain Time

Click here to register for the Zoom!
Once you’ve registered, use the link in your confirmation email to join any of the upcoming meetings. If you do not receive a confirmation email, please reach out to info@myotonic.org.

You are invited to a virtual meeting for Caregivers of Juvenile-onset Adults (JOA)! Join MDF Support Group Facilitator, Ann Woodbury, on the 3rd Tuesday of every month in a confidential, supportive space for parents, guardians, and caregivers to share and connect. Share this event with your friends on Facebook!

Please note this group is ONLY for JOA Caregivers. Click here to learn about our virtual meeting for Juvenile-onset Adults, JOA Warriors.

Questions?

If you have questions, please contact MDF by email at info@myotonic.org or by phone at 415-800-7777. To share your contact information with MDF Support Group, Ann Woodbury, please fill out this form.

We hope to see you soon!

Date(s)

Tue, 05/16/2023 - 05:00AM Add to Calendar 2023-05-16 00:00:00 2023-05-16 00:00:00 JOA Caregivers - Virtual Meeting To know more about this Event, Just go to: https://www.myotonic.org/joa-caregivers-virtual-meeting Location Myotonic Dystrophy Foundation info@myotonic.org America/Vancouver public

Myotonic Dystrophy News

April 2,2024

Participants Needed for Important DM Research Study

The Myotonic Dystrophy Clinical Research Network (DMCRN) sites are currently conducting a critically-important research study designed to help drug developers successfully design clinical trials and understand how to assess the efficacy of potential therapies.

March 29,2024

Request for Applications Open - 2025 MDF Research Fellowships & Grants!

We are thrilled to announce the upcoming launch in April of four grant programs aimed at accelerating research efforts to improve the lives of individuals affected by myotonic dystrophy and pave the way toward finding effective treatments and ultimately a cure for this challenging condition. There are multiple fantastic opportunities available - learn more below & get ready to apply!

March 29,2024

Meet the Early Career Grant Recipient: Dr. Johanna Hamel

Dr. Johanna Hamel, an Assistant Professor in Neurology, Pathology, and Laboratory Medicine, developed her interest in DM1 and DM2 during medical school in Germany. Her residency at the University of Rochester, chosen for its focus on neuromuscular medicine and DM, led to a fellowship under Dr. Charles Thornton, funded by the Clinical Research Training Fellowship Award in Muscular Dystrophy.

March 20,2024

Meet the DM Drug Developers

Leading up to and after the 2024 MDF Regional Conferences in the spring, our biotechnology and pharmaceutical partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions in real time.

February 14,2024

Research Fellow Feature: Cameron Niazi

After spending two years at Vertex Pharmaceuticals, Cameron Niazi pursued a Ph.D. at the University of Florida in Dr. Eric Wang's lab. Attracted by the lab's integration of basic science and translational research, joining the Wang Lab also provided a personal connection to DM1.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

JOA Caregivers - Virtual Meeting

Join us for JOA Caregivers Virtual Meeting!

Every 3rd Tuesday of the Month11:00 AM - 12:00 PM Mountain Time

Questions?

We hope to see you soon!

Every 3rd Tuesday of the Month
11:00 AM - 12:00 PM Mountain Time