John Cooley co-facilitates the Kansas City Regional Support Group with Patricia Gibson. An attorney and the Director of Strategic Sourcing at RSM US LLP, John started the Kansas City myotonic dystrophy support group in 2019. His connection to the DM community began after his younger son was diagnosed with DM1 in 2016. John and his family attended the next two MDF Conferences, which strengthened his commitment to learning about myotonic dystrophy and staying involved locally. Ever since, he has worked to support and advocate for families living with DM. In 2025, John deepened his involvement by joining the MDF Board of Directors.