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Team —
Staff & Interns

Meet Juan Arboleda

Public Health Resource Development Intern

MDF Annual Conference

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Juan Arboleda joined MDF as a Public Health Resource Development Intern in 2024. He holds a Bachelor of Science in Biological Sciences with a minor in Disabilities in Society from the University of Florida, and is currently a PhD candidate in the Genetics & Genomics graduate program at the UF Genetics Institute. Juan’s passion for advocacy and accessible environments was sparked during his time working at the Disability Center on campus. His journey into myotonic dystrophy research began as a technical assistant in Eric T. Wang’s lab. As co-founder and president of the NeuroGenetics Student Organization (NGSO) at UF, Juan leads outreach efforts to inspire the next generation of scientists. At MDF, he is working on updating the toolkit to make information more accessible and engaging based on community feedback. Juan is thrilled to contribute to MDF’s mission and enjoys making science more accessible and fun for people.

Meet the rest of the team

Board of Directors
Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.
Medical & Scientific Advisory Committee
A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.
Staff & Interns
Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.
Support Group Facilitators
Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.
Awareness Ambassadors

Trained volunteers who share personal experiences to raise awareness and help researchers, clinicians, industry partners, and other audiences better understand what it means to live with DM.
Former Board Members
Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.