Home / MDF Board Announces Staff Growth

MDF Board Announces Staff Growth

To Our Myotonic Dystrophy Community,

In 2011 the MDF board of directors made a commitment to address the increasing demand for MDF programs and services, enhance our ability to create strategic priorities and initiatives, and broaden and deepen our funding base. 

To this end, the Foundation embarked on a series of staff changes in Fall 2011. I am delighted to report that this staff development process is now complete.  Please join me and the rest of the Foundation board of directors in congratulating and welcoming the team below.

Molly White joined the Foundation in January 2012 as Executive Director to provide leadership, strategic direction and administrative oversight for the comprehensive programmatic and fundraising efforts of the Foundation and its staff. Molly reports to the MDF Board of Directors and will work closely with them to help propel MDF forward by enhancing the organization’s visibility, establishing priorities and increasing support.

Molly has over 25 years of leadership-level experience in the nonprofit and private sectors building, implementing and running award-winning domestic and international community programs for employers and clients that have included Nike, Gap, Visa, The Ford Foundation, The Wilderness Society and many others. She has created partnerships with organizations ranging from the Office of the U.S. Surgeon General and the Centers for Disease Control and Prevention to the American Academy of Pediatrics, congressional leaders and NGOs to launch initiatives targeting key national issues such as childhood obesity prevention and health care reform. Learn more: Molly’s background.

Lisa Harvey, formerly the Foundation’s Executive Director, has assumed the newly-created role of Education and Research Director, enabling the Foundation to capitalize on her extensive knowledge of and experience with myotonic dystrophy, both in terms of the complex array of issues affecting patients and their families, and with respect to the latest advances in research targeting treatments, therapies and a cure for DM.  Lisa will be the key contact for families with DM, clinicians and researchers. Learn more: Lisa’s background.

Amy Cavallaro, formerly the Foundation’s Executive Assistant, has been promoted to Development Manager for the Foundation.  In her new role Amy will help create the strategy to identify and solicit the foundation, corporate and individual support that will fund our expanding programs and allow the Foundation to continue to serve our growing DM community.  Amy will also be the key contact for people who are advocating and fundraising on behalf of MDF.  Learn more: Amy’s background.

With this talented and passionate team in place, we are confident that the Foundation continues to be uniquely positioned to serve as a leading global myotonic dystrophy patient advocacy and support organization. 

Best wishes for the year ahead, and thank you for your ongoing support and commitment to the Myotonic Dystrophy Foundation.


Jeremy J. Kelly
Myotonic Dystrophy Foundation






© Myotonic Dystrophy Foundation. All rights reserved.