Myotonic Press Room

Welcome to the Myotonic Dystrophy Foundation Press Room

Here we share information, news and reports about advances in research, treatments and the search for a cure for myotonic dystrophy (DM).

Myotonic Dystrophy News

Respiratory Care Recommendations for Myotonic Dystrophy Patients During the COVID-19 Pandemic

Myotonic Dystrophy Foundation Publishes Clinical Care Recommendations for Cardiologists

2020 Congressional Leadership Award & Advocacy Update

Announcing 2020 Myotonic Dystrophy Foundation Fellows

Read more!

Media Contact

Kleed Cumming
Phone: 415-800-7777
Email: info@myotonic.org

Meet Our Board

Learn about the volunteer leaders from private and government sectors, many of whom have families impacted by the disease.

Meet Our Scientific Advisory Committee

Our scientific advisors include leading myotonic dystrophy specialists and researchers from academic, clinical, and government organizations.

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