Myotonic Support Group Facilitator Meeting Feedback Form

This form is for facilitators of Myotonic Support Group Meetings. Please fill out this form in its entirety. Submit a form after each Support Group Meeting you facilitate.

If you have not yet scheduled your next group meeting, please fill out this form.

Name *

Name of Group Meeting *

Location of Group Meeting *

Date of Meeting *

Month

Day

Year

Number of Attendees *

Number of New Attendees *

Did you have a guest speaker? *

Briefly describe this meeting *

Is there anything you may need from Myotonic?

When is your next support group meeting?

Month

Day

Year

CAPTCHA

This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.

Myotonic Dystrophy News

February 26, 2021

International Myotonic Dystrophy Awareness Day - Press Release

In honour of Rare Disease Day 2021, a global alliance of myotonic dystrophy-focused organisations have united to announce the declaration of International Myotonic Dystrophy Awareness Day to be observed each September 15th.

February 17, 2021

In Memory of Sir Peter Harper

It is with great sadness that MDF shares that Sir Peter Harper, groundbreaking DM researcher and author of the book Myotonic Dystrophy: The Facts, passed away last month. We honor and recognize his work to advance our understanding of myotonic dystrophy.

February 17, 2021

DM1 Prevalence Study Published and Available

Myotonic dystrophy type 1 (DM1) is likely underdiagnosed in practice according to research published in the January 20, 2021, online issue of Neurology®, the medical journal of the American Academy of Neurology.

February 17, 2021

Research Fellow Feature: Rong-Chi Hu

MDF is proud to announce Rong-Chi Hu as one of MDF UK’s 2021 Fellowship Recipients! Rong-Chi Hu's project Mechanisms of DM1 cardiac pathogenesis and potential therapeutics will utilize a mouse model to determine the degree to which different molecular mechanisms contribute to DM1 cardiac pathogenesis and to test two different CRISPR-based therapeutic strategies to decrease the expression of CUG repeat RNA in the heart.

January 22, 2021

Be a Myotonic Dystrophy Research Advocate During Rare Disease Month

The MDF community recognizes that we cannot let up in our efforts to vigorously advocate for our fair share of federal funding for research and medical care to achieve our goal of care and a cure for myotonic dystrophy.

Search form

Myotonic Support Group Facilitator Meeting Feedback Form