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News and Stories


June 6, 2019

Did you know that MDF has 22 in-person support groups throughout the country, and 5 virtual support groups? MDF recently launched two new monthly virtual support groups:

May 9, 2019

By the time Tim Haylon launched a Facebook fundraising campaign for his birthday in 2018, there was already a long-established Haylon family tradition of financially supporting myotonic dystrophy research.

May 9, 2019

Northern California MDF Support Group Facilitator Leslie Krongold organized a MDF Family Day at Great America in the San Francisco Bay Area on April 7th. She was joined by 25 community members across 6 families.

May 8, 2019

MDF has had a busy few months of activity in Washington, DC, continuing our efforts to secure research funds, engage lawmakers and make our presence known on Capitol Hill in 2019.

May 2, 2019

SAN FRANCISCO, CA (May 2, 2019): The Myotonic Dystrophy Foundation (MDF) is pleased to announce the publication of the first-ever Consensus-based Care Recommendations for Congenital and Childhood-onset Myotonic Dystrophy Type 1 and Myotonic Dystrophy Type 2.

April 23, 2019

Defective insulin signaling activation may underlie skeletal muscle wasting in DM1 and DM2.

April 23, 2019

Preclinical proof of concept is published for a small molecule strategy targeting toxic DM1 repeat-expanded RNA.

April 23, 2019

A recent study implicates RNAi driven by CUGexp as an independent mechanism in altered gene expression and pathogenesis of DM1.


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