Our Impact

Thanks to you - the Myotonic Dystrophy Foundation (MDF) community members who volunteer, donate, advocate and help fulfill our mission of Community, Care, and a Cure - MDF has become the world’s largest DM-only patient advocacy organization, serving individuals and families around the world.

The State of the Foundation is Strong!

The Myotonic Dystrophy Foundation was founded by families with DM seeking to help one another and to find a cure. Every day, we focus on helping families living with myotonic dystrophy by delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies. You make this work possible, and we want you to know just how much impact you have helped to create. We created a short overview of our recent efforts and impact for your review. Click on the icons below to view our Annual Report, our audited financial statements, and our GuideStar non-profit profile.

We are stronger together. Thank you for your support!



Click here to download a printable version of our 2021 Annual Report.