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Participate in Rare Disease Day with MDF

Rare Disease Day is a worldwide event designed to improve the lives of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public. It takes place on the last day of February each year.

MDF has created a month-long program to make the most of this day for DM. Join us to make DM one of the most prominent disease voices raised this month.

Speak Out to Congress

MDF hosted a webinar on February 25, 2016 to roll out our 2016 advocacy strategy. To view and download the slides from the webinar click here.
We are also promoting a congressional call-in on February 29, 2016, encouraging our community to contact their senators and representatives to let them know what we need for Care and a Cure. Scripts for the call-in will be provided during the webinar. Click here to sign up.

Every Body Counts!

Researchers can’t do mission-critical therapy development and disease discovery work without your help. Click here to join a registry, or sign up for a study or trial today. The first 10 MDF community members to sign up this month will be entered to win a monogrammed lab coat autographed by top DM researchers. In DM research, Every Body Counts: Can we count on you?


Share the Love for Your DM Docs

Valentine’s Day, February 14th, is a perfect opportunity to share the love and show your appreciation to your healthcare team. MDF will send a specially designed valentine to the DM medical community on behalf of all of us. We encourage you to share the image with your trusted healthcare providers as well. We will email it to you and make it available for download during Valentine’s Day week.


Updated Anesthesia Guidelines 

DM patients run a high risk of potentially life-threatening complications from anesthesia. MDF just released an update of the anesthesia guidelines to help you help your clinicians. Please make sure you have the latest version of the guidelines, available here, so you can share them with your clinician and anesthesiologist. Many thanks to Drs. John Day, Richard Moxley, Marla Ferschl and Michael Gropper for updating the guidelines.





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