Home / Sam's Squad Update: A Successful Run for Research and Awareness

Sam's Squad Update: A Successful Run for Research and Awareness

A little freezing rain and wind didn’t deter Sam’s Squad from running and walking a total of 772.9 miles in, and volunteering more than 400 hours for, the Dallas White Rock Marathon on December 4, 2011. The team, made up of friends and family of ten-year-old Sam Florence, who lives with myotonic dystrophy, have been training and raising funds for the past six months. The group set an ambitious goal of raising enough money to fund one year of an MDF research fellowship, or $50,000. We are thrilled to report that Sam’s Squad not only achieved that goal, they doubled it, raising a total $101,120. This gift will fund a full 2-year research fellowship. 

Sam’s mom, Elizabeth Florence, says “One of the blessings of having a child with special needs (there are many) is that it brings out the best in many people in your life. We are so honored by the outpouring from all our friends, family, runners, volunteers and donors!”
In addition to raising critical research dollars, Sam’s Squad also helped raise awareness for myotonic dystrophy by sharing Sam’s story. Thank you so much to the Florence family, Sam’s Squad and everyone who gave so generously on behalf of Sam.

Go to www.sams-squad.com to learn more about this special little boy and the efforts of his friends and family.






© Myotonic Dystrophy Foundation. All rights reserved.