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Myotonic Dystrophy News

April 15, 2021

The Spring Update from our CEO, Dr. Tanya Stevenson, details MDF’s strategic planning efforts, Annual Conference, and Annual Gala. Learn more about our plans for the year!

April 15, 2021

Welcome Mike Knaapen, MDF's New Program Director

MDF is proud to introduce our new Program Director, Mike Knaapen! For the last five years, Mike has directed support, education, and outreach programs for people living with rare disease.

April 15, 2021

Research Fellow Feature: Kamyra Simone Edokpolor

We are proud to announce Kamyra Simone Edokpolor as one of MDF UK’s 2021 Research Fellowship Recipients! Edokpolor's project is titled “MBNL2 Dependent Dysregulation of GABAARs: Implications for CNS Symptoms in Myotonic Dystrophy Type 1”.

March 18, 2021

Opportunities to Participate in MDF Strategic Planning

If you are living with DM1 or DM2, or are the caregiver of an adult or child with the disease, we invite you to join us for a group conversation to help shape the future of MDF. The conversations will run for 60 - 90 minutes and space is limited.

March 18, 2021

Thank You Clare May!

MDF wishes Clare May and her family all the best after 14 years as a phenomenal support group facilitator! She not only provided her home as the meeting site, but dedicated herself to growing the group further through the local clinic and by word of mouth.

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