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Myotonic Dystrophy News

November 19, 2021

The 2021 Virtual Gala was a Spectacular Success!

We simply cannot express the strength of our gratitude for everyone who participated in the Myotonic Dystrophy Foundation (MDF) 2020 Virtual Gala! We are truly blown away by the incredible outpouring of generosity and support.

November 19, 2021

Avidity Biosciences Delivers First Doses in Clinical Trial for Adults Living with DM1!

MDF is excited to share that Avidity Biosciences' Phase 1/2 MARINA^TM study of AOC 1001 is now dosing adults living with myotonic dystrophy type 1! This is a significant step forward for DM drug development and marks the first time a person has been dosed with an Antibody Oligonucleotide Conjugate (AOC).

November 19, 2021

Virtual Support Group for Adults Over 50 Living with DM1 Plan Future Meetings!

The Virtual Support Group Meeting for Adults Over 50 Living with DM1 had its inaugural launch on Sunday, November 14th.

August 4, 2021

Myotonic Dystrophy Foundation Applauds U.S. Senator Tim Kaine for Leading Resolution Designating September 15th International Myotonic Dystrophy Awareness Day

August 4, 2021. Worldwide: The Myotonic Dystrophy Foundation (MDF) applauds U.S. Senator Tim Kaine (D-VA) for introducing the first ever U.S. Senate resolution designating September 15th as International Myotonic Dystrophy Awareness Day.

May 14, 2021

Dr. Richard Moxley, Emeritus Member of the MDF Scientific Advisory Committee

MDF is proud to recognize Richard T. Moxley, III, MD for his distinguished service in the field of myotonic dystrophy and his role on the MDF Scientific Advisory Committee. This month Dr. Moxley is retiring from MDF’s Scientific Advisory Committee (SAC), after supporting MDF since our inception, and will now serve as an Emeritus member.

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