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Myotonic Dystrophy News

April 14, 2022

Join MDF Advocates in Urging Congress to Help Cure Myotonic Dystrophy by Increasing Federal Funding for DM Research

Get ready for our first virtual Advocacy Week! Join us for a webinar on Thursday, April 21st from 12-1 PM PDT/3-4 PM EDT to learn how you can become an advocate and educate your Senators and Representatives about DM to successfully build relationships with them and their staff.

April 14, 2022

MDF Welcomes Volunteer Writers Barbara & Samantha Ochoa

Each month this mother daughter duo will interview a friend or family member from the MDF Community. Of her new volunteer role, Barbara says, "We want to hear all about you, your successes and struggles to live your best life, the things you want to share that others don’t understand, your hobbies, and specifically about how you find the roses amongst the thorns".

April 14, 2022

Research Fellow Feature: Avery Engelbrecht

MDF is proud to announce Avery Engelbrecht of the University of Florida, Gainesville, Florida as one of MDF UK’s 2022 Fellowship Recipients!

April 14, 2022

Research Fellow Feature: Xiaomeng "Belle" Xing

MDF is proud to announce Xiaomeng Xing of the University of Nottingham, England, UK as one of MDF UK’s 2022 Fellowship Recipients!

April 14, 2022

MDF Enters Strategic Planning

In January of 2021, MDF officially embarked upon on a six-month strategic planning process. MDF seeks to identify new community needs, build upon our successes and strengths, gain deeper engagement with our partners, and define key priorities and outcomes to ensure future success.

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