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Myotonic Dystrophy News

July 17, 2020

Lucie Griffiths: Community Moderator Q&A

It all started with the birth of my first and only child in 2007 at age 26. I noticed that my arms hurt constantly holding my newborn child, which then progressed to grip myotonia. I had read about myotonic dystrophy on the internet and felt sure I needed to be tested. Many months later, genetic testing proved I had DM2.

July 17, 2020

Share your Family Story!

Have you shared your personal or family story yet? Already have a featured family story that needs to be updated? Help inspire others by sharing your journey with DM.

July 17, 2020

What Does the Myotonic Dystrophy Foundation Mean to You?

How has the Myotonic Dystrophy Foundation impacted your life? Please submit a 30-60 second video clip sharing your story about how the Foundation has impacted you!

July 17, 2020

Joel Revill: Journey to the Myotonic Board

Joel Revill has been a member of the Myotonic Board of Directors since 2018 although he’s long been connected to the community through his close friends.

June 19, 2020

A Mother's Story - Elizabeth Florence

Liz Florence lives in Dallas, Texas, with her husband, and two sons, Sam, 18, and Will, 20. Sam was born with Congenital Myotonic Dystrophy. Will is unaffected by Myotonic Dystrophy (DM). "I feel very lucky because my husband and I are healthy and we have the energy and ability to take care of Sam and to be there for our other son, Will."

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