THURSDAY, SEPTEMBER 15, 2016

9:00 AM – 12:00 PM	Registration
12:00 PM	Busses to Patient Focused Drug Development Meeting
1:00 – 4:00 PM	Patient Focused Drug Development Meeting
4:30 PM – 5:30 PM	Busses to Crystal Gateway Marriott
5:00 PM	Free time

FRIDAY, SEPTEMBER 16, 2016

TIME	ADVOCACY TRACK	PHYSICIAN-LED TRACK	OTHER COMMUNITY PROGRAMS	OTHER COMMUNITY PROGRAMS
8:30 – 9:00 AM	Briefing & Mini-Training
9:00 – 9:30 AM	Busses to Hill Meetings	Conference Welcome and Plenary
9:30 – 10:30 AM	Hill Day Meetings	DM 101: Getting a Handle on the Basics Dr. Jacinda Sampson, MD, PhD	Open	Research & Vendor Fair
10:30 – 11:30 AM	Hill Day Meetings	Living Long, Living Well: A Current Approach to Palliative Care Laurie Gutmann, MD; Ann Broderick, MD; MDF Community Representative	Open	Research & Vendor Fair
11:30 AM– 12:30 PM	Hill Day Meetings; Congressional Briefing: 12:00 - 1:00 PM, Capitol Hill	DM & Intimacy: Talking to Your Doctor Cynthia Gagnon, PhD; Benjamin Gallais, PhD	Open	Research & Vendor Fair
12:30 – 2:00 PM	LUNCH
2:00 PM	Hill Day Meetings		Support Group Facilitators Meeting (closed) Support Group Facilitators, Paul Formaker	Research & Vendor Fair
3:00 PM	Hill Day Meetings		Chair Tap with Mindy Kim Mindy Kim _______________________________ Community Advisors Meeting (closed) Invited participants, Paul Formaker	Research & Vendor Fair
4:00 PM	Busses to Hotel		First Timers’ Tea Conference first-time attendees, Erica Kelly, David Herbert, Leslie Lynch _______________________________ Drop-In Networking Tables	Research & Vendor Fair
5:00 PM	BREAK
5:30 – 7:00 PM	OPENING RECEPTION

SATURDAY, SEPTEMBER 17, 2016

TIME	PHYSICIAN-LED TRACK	RESEARCH TRACK	DM2 TRACK	JOA TRACK	OTHER PROGRAMMING
7:00 – 9:00 AM	BREAKFAST
9:00 – 10:00 AM	Applying for Disability Coverage: Understanding the Social Security Administration Process Melissa Spencer; Stacy Cloyd, JD; Loraine Dressler			JOA Program Introduction Barry Cohen, PhD Kathleen Austria, RTC, CTRS	Research & Vendor Fair
10:00 – 11:00 AM	DM Pulmonary Considerations: Science & Management Strategies Noah Lechtzin, MD, MHS ______________________ DM & Exercise: A Panel Discussion Katy Eichinger, DPT and community panelists	Update – MDF 3.0: Accelerating Drug Development John Porter, PhD	DM2: Symptoms Overview & Management Strategies John Day, MD, PhD Chad Heatwole, MD Giovanni Meola, MD, PhD	JOA Program: Stump the Doctor with Dr. Charles Thornton, MD	Male Caregivers Support Group Research & Vendor Fair
11:00AM – 12:00 PM	Occupational Therapy: Getting a Grip on Daily Activity Cynthia Gagnon, PhD ______________________ DM & Sexuality: Talking with Your Partner Facilitated Support Group Discussion with Benjamin Gallais, PhD Transitioning to Adulthood: Surviving & Thriving Jo Ann Simons, MSW DM & the GI Tract: Overview & Symptom Management Linda Nguyen, MD DM101: Getting a Handle on the Basics Jacinda Sampson, MD, PhD		DM2: Research Update Dr. John Day,MD, PhD Chad Heatwole, MD Lukasz Sznajder, PhD Giovanni Meola, MD, PhD	JOA Program: Stump the Doctor Follow Up Discussion Barry Cohen, PhD Kathleen Austria, RTC, CTRS	Research & Vendor Fair
12:00 – 1:00 PM	LUNCH
1:00 – 2:00 PM	DM & the GI Tract: Overview & Symptom Management Linda Nguyen, MD Family Planning Karin Blakemore, MD Occupational Therapy: Getting a Grip on Daily Activity Cynthia Gagnon, PhD	Research Update – Poster Presentations & Discussion John Porter, PhD		JOA Program Barry Cohen, PhD Kathleen Austria, RTC, CTRS	Research & Vendor Fair
2:00 – 3:00 PM	DM & the Brain: Science & Symptoms John Day, PhD; David Moser, PhD; Giovanni Meola, MD, PhD
3:00 – 4:00 PM	Early Stage DM Therapy Development Update Matt Disney, PhD; Jane Owens, PhD; Roberto Guerciolini, MD
4:00 – 5:00 PM	DM Therapy Development: Clinical Trial Updates Ionis Pharmaceuticals, Laury Mignon, PhD; AMO Pharma, Joseph Horrigan, MD
5:00 – 5:15	Conference Q&A
5:15 – 5:45 PM	MDF Community Awards Presentation Screening: Heroes film
6:00 – 7:30 PM	Closing Dinner Party