Take action
You can take action for myotonic dystrophy by speaking out to your community. Learn how below.
Support $10 million for DM research
Ask your U.S. Senators to sign Senator Amy Klobuchar’s letter supporting $10 million for peer-reviewed myotonic dystrophy research through the CDMRP.
The deadline is Monday, May 11 at noon EDT. Contact your Senators today and urge them to sign on.
How you can help make change
Your voice matters. Together, every action creates real change.
Call your representatives
Share your connection to DM and ask for support for increased federal research funding. Identify yourself as a constituent. Contact details are available at congress.gov or by calling 202-234-3121.
Visit a district office
Meeting with your elected official (or staff) is a powerful way to advocate (refer to the House of Representatives or Senate directories). Contact MDF for help preparing, sharing your story, and reinforcing the need for DM research funding.
Send a letter or email to Congress
Using our sample letter template, you can easily craft a clear and impactful message to your members of Congress. The template helps you share your personal connection to DM and highlight key advocacy priorities.
Project Vote Smart
Visit Project Vote Smart to see how your Senators and Representatives have voted on specific issues.
Be informed about bills & other legislation
Learn about bills and other legislation via Congress.gov, the Library of Congress's official web portal.
Register to vote
Register to vote to make your voice heard on issues that matter to you and the DM community.
Become a State Advocacy Captain
Become a State Advocacy Captain by watching MDF's webinar with step-by-step guidance on helping increase DM research funding.
Review our advocacy resources
Everything you need to confidently raise your voice and make an impact for the DM community.
Check out our Digital Academy
Learn from experts and community members through our library of informative recorded sessions.
Get started today
If you’re ready to get started or need support along the way, please contact MDF at 415-800-7777 or info@myotonic.org.